Stories Behind A Life Suspended: 2

Story #2

As a special education parent, I kept stacks and piles of IEP’s (even outdated ones), evaluations, testing results, report cards, progress reports and notebooks filled with notes either taken on numerous phone calls or at team meetings. I had to buy a file case to house all of Jack’s paperwork (by the age of 5). I collected documentation and tried to follow a paper trail to understand. One of the most challenging parts of being a special needs parent, was going from mother to case worker. I became the hub of all things, while not being an expert in any of them. In the background of my mind there was a low, audible hum telling me I wasn’t “qualified” to execute this job for my child. Clearly, there was someone else who could do this, right?

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